The project started in Septembre 2022 and the kick-off meeting was held in Paris Cité University in September

The project started in Septembre 2022 and the kick-off meeting was held in Paris Cité University in September

The Alicante meeting took place in November 2024 with all the teams participating in the LIVES project…
The preliminary results of the Project were presented in French at the “Journées annuelles des maladies rares…
Employment and work ability in individuals living with rare diseases Inserm and VUB are proud to share…
Evaluating Health-related Quality of Life (HRQoL) Scales for Rare Diseases from a Quality of Life (QoL) Perspective…