Communication
The preliminary results of the Project were presented in French at the “Journées annuelles des maladies rares…
Project Meeting in Alicante
The Alicante meeting took place in November 2024 with all the teams participating in the LIVES project…
Publication
Evaluating Health-related Quality of Life (HRQoL) Scales for Rare Diseases from a Quality of Life (QoL) Perspective…
Kick-off Meeting !
The project started in Septembre 2022 and the kick-off meeting was held in Paris Cité University in…