Employment and Work Absenteeism in Individuals Living with a Vascular Liver Disease: A European Multicenter Study
Authors: Terhi Kangas, Aurélie Plessier, Clémence Ramier, Laure Elkrief, Virginia…
For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won’t Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases
Authors: Anouck Alary, Jane Sattoe, Lynda Sifer‐Rivière, Isabelle Aujoula, José Mira,…
Fatigue, Depression, and Impaired Health-Related Quality of Life in Patients with Vascular Liver Diseases: A Multicentric European Study
Authors: Clémence Ramier, Virginia Hernandez-Gea, Laure Elkrief, Annalisa Berzigotti, Andrea De Gottardi, Antonina Antonenko,…
Employment and Work Ability in Individuals Living with Rare Diseases: A Systematic Literature Review
Authors: Nicolas Bougas, Terhi Kangas, Katrien Vanthomme, Jose Joaquín Mira Solves, Gaël Brulé, Helene Mellerio, Hadewijch Vandenheede & Agnes…
Evaluating Health-related Quality of Life (HRQoL) Scales for Rare Diseases from a Quality of Life (QoL) Perspective
Authors: Gaël Brulé, Maria Caiata Zufferey & Agnès Dumas Journal:…