For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won’t Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases

Authors: Anouck Alary, Jane Sattoe, Lynda Sifer‐Rivière, Isabelle Aujoula, José Mira, Guenda Bernegger, Giada Danesi, Eva Gil‐Hernández, Pura Ballester, Mercedes Guilabert, Doortje Nipius, Jeanina Kousemaker‐Nieuwdorp, Kay van der Meer‐Kuiper, Stefania Cannavò, Cecile Drossart, Liliane Veniat, María Caiata Zufferey, Agnes Dumas

Journal: Health Expectations • 2026

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For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won’t Make It: A Participatory Qualitative Study of Health-Related Quality of Life in Rare Liver Diseases

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